We are thrilled to celebrate awareness day with our 17q12 crew on July 12th! There is a lot to share and celebrate that is in the works for the 17q12 community. This past year the 17q12 Foundation has been working diligently on the onboarding process to build our medical registry. We are in the end phase and our launch is just around the corner. We have been working alongside other organizations in the rare community, and are grateful for the invaluable support we have received from NORD (National Organization for Rare Disorders) throughout this process. In the last year, the 17q12 Foundation has welcomed new families and individuals worldwide, and we have had the opportunity to connect through our virtual meet-ups. We hope to plan another in-person conference in the next year. This year's fundraising goal will help make another conference possible and will go towards covering the annual maintenance costs for the medical registry. We will continue to push for more research and advocate for individuals with 17q12 duplication or deletion syndrome. As our community grows we appreciate all the support from family, friends, and medical professionals. Thank you for supporting individuals with a chromosome 17q12 syndrome! 100% of profits will support the 17q12 Foundation. chromo17q12.org