About this campaign
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We are thrilled to celebrate awareness day with all of you on July 12th! This past year the 17q12 Foundation made strides toward expanding the 17q12 community. We became members of two valuable organizations; NORD (National Organization for Rare Disorders) and Global Genes' Global Advocacy Alliance. The 17q12 Foundation welcomed new families and individuals from around the world, received our first grant, and was nominated for a RARE Champions of Hope Award from Global Genes. This summer we begin the process of launching our medical registry, and it's expected to launch in early 2023! Stay tuned for more details! This year's fundraising goal will help cover the annual maintenance costs. We will continue to push for more research and advocate for individuals with 17q12 duplication or deletion syndrome. Our community is growing and we are so grateful for all of the support from family, friends, and medical professionals. 100% of profits will support the 17q12 Foundation. http://chromo17q12.org
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