Andrew had his first seizure at 6 months old and was diagnosed with a SCN1A gene mutation/ Dravet syndrome at about 1 year old. Dravet Syndrome is a rare form of intractable Epilepsy that impacts those involved for their lifetime; characterized by prolonged hard to stop seizures, significant developmental delays, sleep and feeding problems. Dravet Syndrome impacts 1 in 15,700 people. Andrew is currently 5 years old and the happiest kid in the world! He is by no means seizure free and has some developmental delays but he continues to learn and progress and show us his own path. He is on 3:1 Medical Keto where his food is measured to the 1/10th of a gram. There are no cheat days or chest meals. He is also on daily medications that we, with his doctors, are still trying to find the best combination of. The support of the DSF is invaluable to us and other Dravet families because they support the research, among many other things, to find new meds, treatments, and hopefully, ultimately a CURE! Help us find a cure through research by purchasing a shirt or sweatshirt or by donating directly to the DSF! Thank you from the bottom of our hearts for supporting our family as well as all of the Dravet Superheroes!