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There?s a lot of learning ? as well as highs & lows ? when it comes to this disease. I knew very little before my dad?s diagnosis, and let me tell you, ALS requires a great deal of strength for both the patient & their loved ones. I?ve realized engaging & generating awareness is equally important & that?s why I?m participating in the Walk ALS Down East in May. The event raises funds to support the ALS community in North Carolina & build ALS awareness to find treatments and a cure. It?s All Hands on Deck! I?m walking for my dad and for all those impacted by this life-altering, terrible disease. 

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal disease that slowly robs the body of its ability to walk, talk, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, at any age and there is still no known cause or cure. 

Over the past few years, there have been advancements in ALS research, as well as expanded resources and access to care for people living with ALS. But now, more than ever, we need to keep the momentum going. We need to continue to push for more treatments and find a cure for ALS. Appreciate your support & any well wishes!

Please feel free to join us on our Facebook Group and share your stories, pictures or memories of Bobby and the event! The BT?s ALS Crew team link for the walk is also available, included!

Facebook: https://www.facebook.com/groups/1676897350147145

Walk ALS Down East: 2026 WALK ALS Down East - ALS United North Carolina