About this campaign
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Hello!
Thank you for supporting our cause!
It's time again for our all inclusive, virtual fundraiser for Ogden Syndrome! Last year with the support of our community around the World we were able to absolutely demolish our goal of $25,000 and went on to raise nearly $50,000 for Ogden Syndrome research!
This year we are shooting for the stars and hope to match what we were able to accomplish last year, $50,000!
All funds raised will be split between increased community building efforts (with the ultimate goal of a much anticipated in-person family conference in the coming years)
and Dr. Gholson Lyon's continued research!
A conference will be a invaluable way to support community building and data collection and it is also a huge undertaking and expense so, as we build up to that, immediate smaller milestones would be to increase regional family gatherings and support smaller activities!
It is imperative that we continue to collect data and work together as a community to build a better future for Ogden Syndrome!
Please note donations are in USD.
https://www.zeffy.com/peer-to-peer/50dc29de-8fbd-4ab8-86a2-5b98927569ce
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