About this campaign
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Who We Are
KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.
Our Challenge
KAND is a neurodegenerative disorder caused by mutations in the KIF1A gene that rob children of their ability to walk, talk and see, and sometimes even eat or breathe. As our children grow, their condition worsens with this progressive--sometimes fatal--disorder, which is why our mission is so urgent.
There is no treatment. Yet.
Call to Action
KIF1A.ORG is building a growing community of patients, families, researchers, clinicians and supporters dedicated to bringing treatment to THIS generation of KIF1A patients. Treatment is within reach, but there are two obstacles in our way: time and money. You can empower KIF1A families to accelerate our urgent mission and spread the word about our mighty community by purchasing your own KIF1A.ORG tee. KIF1A families from around the world thank you for joining our mission!
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