About this campaign
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Team Davie Steps is part of Team CDG for the Million Dollar Bike Ride, raising funds to support research for Congenital Disorders of Glycosylation (CDG).
Davie has CDG?a rare genetic condition that shapes so much of our daily life. From seizures and tube feedings to therapies and appointments, our days are filled with both challenges and quiet, meaningful moments.
The name Davie Steps began in the NICU, when we were reminded that Davie would show us what she needed, and when. Since then, we?ve come to see her journey not in milestones, but in steps?each one uniquely hers, unfolding in its own time.
This shirt is a simple way to be part of that journey.
Funds raised through this campaign support CDG research through CDG CARE and are eligible for a matching research grant through the Penn Medicine Orphan Disease Center. Every purchase helps move research forward and brings hope to families like ours and so many others in the CDG community.
If you would prefer to support directly through our fundraising page, you can do so here: https://charity.pledgeit.org/MillionDollarBikeRide/@TeamDavieSteps
Thank you for being part of Team Davie Steps ?
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