In the summer of 2024, Brooks was diagnosed with a rare genetic condition called Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay, also known as ARSACS. This is a progressive neurodegenerative disorder that causes difficulty walking, loss of balance, and muscle stiffness that leads to the use of walking aids and eventually, a wheelchair.

As we move forward in our mission to raise money and awareness for ARSACS, we have launched the first US Nonprofit for this rare disease. AFA, along with the Canada based ARSACS Foundation have the common goal of finding disease modifying treatments and ultimately a cure. All proceeds and donations will go directly to AFA (Action for ARSACS Foundation USA) where we are focusing on funding the development of gene therapy and various medication trials.

We are currently awaiting our official 501(c)(3) status with the IRS but are still able to take donations while we wait for approval by end of 2025.