About this campaign
Looks like your text is -149 character over the limit. Please shorten it to 200 characters or less.
Looks like your text is -149 character over the limit. Please shorten it to 200 characters or less.
This campaign is in honor of Noah's birth flower- Larkspur.
Our sweet daughter Noah was diagnosed with ECHS1 deficiency at 4 years old. This is an ultra rare genetic mitochondrial disease with less than 100 documented cases. It causes a buildup of toxic metabolites as our cells make energy, which causes damage and compounding problems over time. There is no cure- only symptom management. Amazingly, there is research being done at UT Southwestern to create a gene therapy for ECHS1 deficiency! It is being funded exclusively by parents of children with ECHS1, so we humbly ask for your help to raise money and awareness.
Thank you so much for your support, it means the world to us!
Looks like your text is -9313 character over the limit. Please shorten it to 10000 characters or less.
