Costello Syndrome Family Network (CSFN) is an active network of families engaged in creating awareness around this rare disease and support for those affected by it. CSFN works nonstop to help families and individuals living with Costello Syndrome to live their best possible lives with the best supports available. Since Costello Syndrome is so rare, we know that sharing awareness with one another increases knowledge available to researchers and lessens the burden of navigating the complex world of developmental and physical challenges. CSFN hosts a research and family conference every other year, with our next to be held in 2025 in Orlando, FL.