About this campaign
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Every shirt tells a story. Ours is about hope, strength, and the fight for a cure.
Our daughter, Gemma, was diagnosed with PKAN (Pantothenate Kinase-Associated Neurodegeneration), a rare, progressive neurological disorder caused by changes in the PANK2 gene. Right now, there is no cure ? but researchers are developing life-saving gene therapy that has the potential to change everything for children like Gemma.
This campaign helps us raise crucial funds for gene therapy research and clinical trials, which are the best chance to stop PKAN?s devastating progression. By purchasing a shirt, you are not just wearing a design ? you are standing with families, raising awareness, and helping us bring a cure closer.
Every shirt sold = more funding for research
Every donation = hope for tomorrow
Every share = spreading awareness for PKAN
Together, we can light the way toward a future without PKAN. Thank you for supporting Gemma?s journey and all the children bravely fighting this disease.
Join us. Wear hope. Fund a cure.
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