We are launching this campaign to continue our awareness and fundraising efforts for our non-profit, The LCC Foundation. All proceeds will go directly to our organization, which will continue to fund and support the medical research for LCC/Labrune Syndrome. LCC/Labrune Syndrome is an ultra-rare degenerative genetic disorder that currently affects approximately 65 people worldwide. This campaign is the first fundraising specifically dedicated to supporting an upcoming drug clinical trial we are working on with the research team in Washington, D.C. This trial is expected to enroll 20+ patients, including Benny. Thanks for continuing to support us - much LOVE