Lennox is a 2 (almost 3) old who was born completely normal and healthy. He was developing normally until November 2022 when he began losing his motor skills. By December 5th, 2022 he was unable to walk. By January 2023, he was unable to use his hands properly, and by late February 2023 he began to stop eating and drinking normally. After two MRI's, ER visits, genetic testing, neurology appointments, genetic appointments, swallow study, and a week and a half hospital stay at Johns Hopkins Hospital, it was determined that he has a rare genetic condition called Aicardi Gouti?res type 6. This disease causes neurologic decline, loss of motor skills, loss of speech, irritability, and increased muscle tone. Lennox underwent a feeding tube surgery on 3/17/2023 and currently receives the majority of his nutrition through this tube.

There is currently no cure for this disease. Lennox also requires intense physical, occupational, and speech therapy in order to try and regain his motor skills back and to keep his muscles from atrophying.

We thank everyone who has reached out, donated, and has just simply been there for the family. We truly do appreciate it and are so thankful for all of our support. Lennox is surrounded by so much love and for that we are so grateful. Please follow his journey in hopes to educate awareness for his rare genetic disease.