Our daughter Leah began having seizures less than 24 hours after she was born. After hundreds of tests she was diagnosed with a rare genetic disorder KCNQ2.

As a result of the disorder, Leah has been diagnosed with numerous conditions including severe visual impairment, global developmental delay, drug resistant epilepsy & infantile spasms, and several other conditions.

Leah and many others with KCNQ2 have to work harder than most for daily things most take for granted. Some things she may never be able to do and some will require massive amounts of ongoing assistance. Her and her peers undergo daily therapy, treatments and countless doctors appointments. It is not an easy road for them or their families.

Please help us bring awareness to KCNQ2 and help fund research for this rare disease that desperately needs it.

With love and gratitude from Leah & Family!

PS. With Leah's visional impairment she loves lights so we thought fitting to include them on our shirt and hopefully with these funds bring a "lightness" to the day to day hardships many face with KCNQ2. Plus purple for Epilepsy Awareness!