About this campaign
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JOIN US! Rock our T-Shirt all summer long and show you care.
As NUS1 Families, our progressive genetic disorder doesn't go away. But if we advocate, learn more, talk about it....and take the courage to build the connections between the scientists and the doctors, the families and the researchers, than we can move mountains.
This summer we embark on the first national VIRTUAL WALK A THON!
We are walking in all forms, in small and long distance and in new places and familiar locations to build support for NUS1. Everything counts.
WALK WILDLY!! RARE DISEASE is RARE Walk
and our children and loved ones are incredible NUS1 Warriors.
p.s. T-shirts are for all summer long
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Zeffy FUNDRAISING PAGE (linked to walk-a-thon campiagn)
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Zeffy FUNDRAISING PAGE (linked to walk-a-thon campiagn)
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