Cornelia De Lange Syndrome Foundation Inc

The Cornelia de Lange Syndrome (CdLS) Foundation is a national organization that supports individuals with CdLS and their families to ensure early and accurate diagnosis of the rare genetic syndrome and make informed decisions throughout their lives. Our key goals are creating community and enabling advocacy for people experiencing CdLS and other isolating conditions.
The CdLS community is a diverse and vibrant group united by their shared experiences and desire to support each other through the journey of living with the rare spectrum disorder. As we walk with families on the path of loving and caring for their child, we are evolving too and learning new ways to stand by them in the digital age.