Moebius Syndrome Foundation

Moebius Syndrome Foundation is a charitable 501-c-3 nonprofit organization established in 1994. Our mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

As a very simple explanation, Moebius syndrome is a form of facial paralysis combined with outward, to the side, eye paralysis. Individuals with Moebius syndrome typically cannot make facial expressions, such as smiling, frowning, squinting, or blinking. Speech, eating, and lip movement may also be affected. People with Moebius syndrome also cannot move their eyes out to the side, as you would if you were looking over your shoulder without turning your head. The syndrome has a wide range of presentations and may occur on one or both sides of the face.

Please help support our important cause by purchasing merchandise from our official Bonfire store, donating, or by creating a fundraiser on their behalf. We appreciate your support!