About this campaign
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What Is Moebius Syndrome?
As a very simple explanation, Moebius syndrome is a form of facial paralysis combined with outward, to the side, eye paralysis. Individuals with Moebius syndrome typically cannot make facial expressions, such as smiling, frowning, squinting, or blinking. Speech, eating, and lip movement may also be affected. People with Moebius syndrome also cannot move their eyes out to the side, as you would if you were looking over your shoulder without turning your head. The syndrome has a wide range of presentations and may occur on one or both sides of the face.
Moebius Day in Maine (officially Moebius Syndrome Awareness Day) is recognized on January 24th annually. As of last week, the state of Maine joined others in acknowledging this day to promote understanding of this rare condition, encouraging purple attire and visibility through local stories and events, like those shared by Many Faces of Moebius Syndrome and Harper, a 12-year-old in Maine. We missed creating shirts for this occasion this year, but make sure to snag yours for next year! Wear it proudly between now and then too!
Harper's story: https://www.mfoms.org/team-10/harper
If the required number of shirts are sold, the batch will end on February 13th and orders will arrive between February 25th and March 6th!
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