About this campaign
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Blake is a brave 2-year-old girl living with ROHHAD-Rapid Onset Obesity, Hypoventilation, Hypothalamic Dysfunction, and Autonomic Dysregulation. ROHHAD is an extremely rare and terminal syndrome that affects the brain?s hypothalamus and the body?s ability to regulate essential functions like breathing, temperature, hormones, heart rate and metabolism. Blake is trach and ventilator dependent 24/7, tube-fed, and faces challenges most children her age could never imagine. Despite everything she has endured, she continues to fight every single day. Because ROHHAD is so rare, there is currently no cure and very little research. Our goal is to raise awareness, support Blake and our family through her ongoing medical journey, and help shine a light on this devastating disease. Wear Blake?s shirt. Spread awareness. Help us fight ROHHAD!
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