The FSHD Society is the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. We are solely dedicated to treating and curing FSHD through basic, tran... Read more
The Lupus Research Alliance is dedicated to finding a cure for lupus. We believe in doing one thing, and doing it well. Founded in 1999, our sole mission is to prevent, treat and cure lupus through medical research. The Alliance applies a strategic... Read more
Each year, BCAN provides thousands of patients, caregivers and the medical community with the educational resources and support services they need to navigate their bladder cancer journey. BCAN works collaboratively with the medical and research pro... Read more
The mission of the ALS Therapy Development Institute (ALS TDI) is to develop effective therapeutics that stop ALS as soon as possible. Focused on meeting this urgent unmet medical need, ALS TDI executes a robust discovery program, as well as a multi...
The Organization for Autism Research (OAR) was created in December 2001 to apply research to the challenges of autism. OAR's defines applied research as research that directly impacts the day-to-day quality of life of learners with autism. It entail... Read more
Founded in 1947, Dana-Farber Cancer Institute provides expert, compassionate care to children and adults with cancer while advancing the understanding, diagnosis, treatment, cure, and prevention of cancer and related diseases. Since 1948, the Jimmy...
The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties... Read more
The Parkinson's Foundation makes life better for people with Parkinson's disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience, and passion of our global Parkinson's community. Connec... Read more
Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States has Friedreich's ataxia. It is estimated there are 4,000 individuals affected with FA in the U.S., and... Read more
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Fragile... Read more