AbbyStrong is evolving. What began as a family's fight against Niemann-Pick Disease Type C is growing into a broader movement against childhood dementia as a whole, the class of rare, terminal conditions that steal a child's ability to walk, talk, and remember. We're dropping "NPC" from our public name because our mission has outgrown one diagnosis. We stand alongside every family facing a childhood dementia, not just our own.

Treatments & Cures

Funding and accelerating research toward real therapies, not just awareness

Advocacy & Policy

Pushing for legislation, funding, and systems that recognize childhood dementia as a public health priority

Family Navigation & Education

Helping families find their way through diagnosis, care, and impossible decisions, so no one navigates it alone

Awareness

Making childhood dementia visible, because a disease no one's heard of gets no research dollars and no urgency

We're positioning AbbyStrong as a coalition of corporate, nonprofit, and public sector partners. Every shirt, every dollar, every voice moves this mission forward.