We?re hosting this CACNA1A Walk in honor of our son, Gio. After a year of searching for answers, Gio was diagnosed with CACNA1A?a rare genetic disorder that affects how the brain sends signals and causes ongoing neurological challenges. There is no cure, and information is limited. Like so many rare disease families, we?re learning as we go and taking this journey one step at a time. Behind Gio?s bright smile is a little boy who works incredibly hard every single day. Early intervention, dedicated therapists, and our incredible village have made such a difference in his life, and we are beyond grateful. We?re walking to raise awareness, support research, and bring families together?because no one should have to navigate rare disease alone. Thank you for being here, for supporting Gio, and for standing with our family. Every step means more than you know.

Details on the 5K:

Sunday, May 17, 2026

10am start

Hamburg, NY

All proceeds will go to the CACNA1A Foundation, a parent-led 501(c)(3) non-profit to help with much needed research in an effort to find a cure!