Our son, Harrison, is the sweetest 2.5 year old living with Aicardi-Gouti?res Syndrome (AGS), an extremely rare genetic condition that affects his immune system and brain. Because AGS is so rare, there is still so much to learn about the condition and how best to treat the children who live with it.

Harrison is cared for by an incredible team at Children?s Hospital of Philadelphia (CHOP), where his condition is closely managed and where dedicated doctors and researchers are working to better understand rare diseases like AGS.

We created this fundraiser to help support CHOP and their ongoing efforts in rare disease research, treatment, and care. Every shirt purchased is more than just a way to show your support for Harrison, it is a contribution toward hope, research, and a better future for children living with rare diseases.

Thank you for loving Harrison, supporting our family, and helping us give back to the hospital and the people who work so hard for kids like him. ??