Jake?s disease has impacted many aspects of our life and will continue to do so until more can be understood.  In 2020 we found the TANGO2 Research Foundation, and we finally have a group of people that understand what we have been through and continue to experience.  Through them we have hope. Contributions to the Foundation will continue to fund the research we need to understand this rare genetic disease and help our kids grow to have long, happy lives. For these kids, it is like a clock that is ticking and we don?t know haw fast it?s ticking. 

Please spread awareness by sharing this. Or, on Rare Disease Day, please consider giving in order to support life-saving research for Jake and others like him from around the world. 

To give, visit my team page on TANGO2 Research Foundation's fundraising site: 

https://secure.frontstream.com/t2rf-virtual-fundraising/team/934424 or visit: www.shinealightontango2.com and donate to Team Taggart. 

To learn more about TANGO2 Disease, visit the TANGO2 Research Foundation's website at https://tango2research.org/