About this campaign
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Every purchase is a way to raise funds for further research & resources. Wearing your SATB2 clothes also spreads awareness & shows love & support for our special SAS kiddo Landon!
Landon?s Story
Landon was born healthy with no birth-related complications. It wasn?t until we noticed he wasn?t meeting the developmental milestones most children reach that we began to worry.
After years of therapies, specialist appointments, countless tests, significant medical expenses, and many frustrating roadblocks, we felt defeated as parents with no answers.
Then, at 6 years old, Landon was finally diagnosed with SATB2 syndrome, a rare genetic condition that affects development, speech and communication, learning, feeding, teeth, and bone development.
Although Landon continues to amaze us and is thriving in so many ways, we don?t know what the future holds. What we do know is that every child with SATB2 deserves hope, support, and continued research.
Each year on August 22, we come together to raise awareness and funds to support research and provide assistance to individuals and families affected by SATB2 syndrome.
Landon will most likely never be able to speak with his own voice. Because of that, we will proudly be his voice?today, tomorrow, and always.
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