About this campaign
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In late April of 2024, after months of tests and treatments, Mica, was diagnosed with ALS (Amyotrophic Lateral Sclerosis). ALS is a progressive neurodegenerative disease that affects motor neurons in the brain and spinal cord, leading to muscle weakness, atrophy, and ultimately paralysis. As motor neurons die, the brain loses its ability to initiate and control muscle movement, affecting voluntary activities like walking, speaking, and swallowing. The exact cause of ALS is largely unknown, though both genetic and environmental factors are believed to play a role. There is currently no cure, and the diagnosis is fatal, so treatment focuses on managing symptoms and improving the comfort and quality of life of the patient.
Shortly after her diagnosis, Mica's neurologists informed her of a clinical trial she was a candidate for that involved brain surgery and injecting stem cells from a fetus into one part of her brain, in hopes of helping to slow the progression of deterioration in one arm. However, after many consultations, gathering more information, contemplating everything, prayer, and meditation, Mica ultimately decided the risk was too great to continue with the clinical trial and decided to pursue other treatment options. She stayed hopeful and positive with every step forward through that process.
Although the past two years have been nothing short of doing every possible thing she can to heal her body, Mica's disease has continued to progress aggressively. Since May, Mica's daughter Maya, has had the privilege of being her mom?s primary caregiver, but As the disease has progressed?and our life realities have shifted?we?ve reached a point where we can?t do this alone anymore. Because of this transition, we now need to hire around-the-clock care to make sure she is never without the support she needs. Just to provide 12 hours of care a day, 7 days a week, at $20/hour, the cost comes out to $1,680 per week?over $7,000 per month. This care isn?t a luxury; it?s what allows my mom to remain at home, to be moved safely, and to live with dignity as ALS takes more of her physical independence. Again, our hope here is to raise as much money and support for her as we can, to take away any unnecessary burdens she will face. 100% of the donations will be going towards covering her costs associated with fighting ALS.
Our mom has always been a beacon of selflessness, kindness, and devotion. To us, her life is a testament to the quiet strength and unwavering love that defines motherhood. Despite working so hard to make sure ends meet, she has always been there for us with comfort and support. Our mom?s kindness extends beyond family and friends, into her work as a LPC. She has always encouraged my brother and I to pursue our dreams, and gives us the courage to strive for more in life. Even recently, through these extremely tough times, her high spirit hasn?t wavered. My brother and I are hoping to give back to her for everything she has ever given us.
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