Project Als

In 1998, Jenifer Estess was a 35-year-old New York theater and film producer, building a life and career she loved, when she was diagnosed with ALS.
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At the time, the guidance she received was simple and devastating: max out your credit cards, see Paris, and eat junk food. There were no meaningful treatments. No clear path forward. And little urgency behind the science.
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Jenifer refused to accept that.
 
Instead, she and her sisters founded Project ALS, because the system was broken. Research remained siloed, and people living with ALS couldn?t wait.