About this campaign
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Meet Jamen ?
Jamen is our happy, determined 4-year-old who loves trains, dinosaurs, water, and music. He is also one of the children living with an STXBP1-related disorder, an ultra-rare neurodevelopmental disorder that affects nearly every part of his development.
Right now, there is no cure or treatment that addresses the underlying cause of STXBP1. But research is moving forward ? and that gives us hope.
Every Team Jamen shirt helps us raise awareness for STXBP1 and supports the STXBP1 Foundation's work to advance research toward better treatments and, ultimately, a cure.
Wear your Team Jamen shirt proudly. Start conversations. Help us make STXBP1 a little less rare in the world.
Thank you for being in Jamen's corner. ?
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