It's that time of year again where we participate in the annual move to cure event! Run, walk, roll, or bike to raise awareness and money for research for STXBP1 Disorders! This year I will be training for and running a half marathon (13.1 miles) on November 15th, just days after Nate's 15th birthday!

Nate was born missing a small portion of his 9th chromosome, including the stxbp1 gene. Syntaxin Binding Protein 1 is an important brain protein that is responsible in aiding signals from the brain to the body across synapses. It has caused Nate to have a severe form of epilepsy, motor disorders, numerous medical issues, developmental delays, and much more. When he was a baby, nothing was known about this disorder and over the years we have come a long way! It is through parent led awareness and advocacy that there is now much needed research happening, including gene therapy and medication trials!

Nate has had a lot of difficulties, but one thing that always remains true is his resiliency. He has overcome so much and continues to be an inspiration for his family and friends on a daily basis. Always in a happy mood, he knows no enemy, and loves unconditionally. Show your support for "Nate the Great" in moving for a cure!

Running is a privilege and honor that i never take for granted. Nate is my inspiration to push myself every day. Thank you for your support!

"Run when you can, walk if you have to, crawl if you must; just never give up" - unknown