About this campaign
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Niley was diagnosed with STXBP1 at 7 years old. Those were difficult years not having an answer and not being able to get the right support for her. Because of the STXBP1 foundation, diagnoses are happening much earlier and there is an FDA code for the condition! The foundation also supports families, is creating a network of doctors, and funds research for epilepsy and other treatments, and ultimately finding a cure! We appreciate your support in these efforts!
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