Ogden C.A.R.E.S. is a non-profit foundation dedicated to supporting the approximately 120 families across the globe who are living with an Ogden Syndrome diagnosis. 

Ogden Syndrome is an X-linked neurodevelopmental disorder that results from mutations on the NAA10 gene. Those effected exhibit a wide range of severity, but many individuals present with global motor deficits, decreased cognition, and issues with seizures, heart arrhythmias, and impaired vision.

Currently, there is no cure for Ogden Syndrome, so there is much work to be done to get those we love the adequate care and treatment they need! We are pursuing a couple different treatment development options including gene therapy and drug repurposing and for each the journey is long, complex and expensive! We will only get there with the support of our community! Many of those afflicted may be non-verbal, but with your help, their voices will be heard!

For the second year in a row we invite our global community to come together in support of this ultra rare disorder. Anytime between October 5th and October 15th rally your friends and family to walk, run or roll around the track of your choosing in honor of Ogden Syndrome Day which is October 10th.

Much Love,

The Ogden C.A.R.E.S. Leadership Team