About this campaign
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The Norris Lab at MUSC is working to better understand the genetics behind connective tissue disorders like Ehlers-Danlos Syndrome (EDS) and related cardiovascular conditions.
For many patients and families, mine included, these conditions are life-altering?and answers are still limited.
That?s why research matters.
When you purchase a shirt, you?re doing more than showing support?you?re helping move the science forward.
Your purchase helps:
- Fund ongoing research in EDS and connective tissue disorders
- Support discoveries in genetics and cardiovascular health
- Bring hope to patients and families searching for answers
Each design was created to reflect the heart of our work:
Science-driven ? celebrating genetics, discovery, and innovation
Patient-centered ? honoring the EDS community and rare disease warriors
Purposeful ? every piece supports real research happening at MUSC
Whether you?re a patient, family member, student, clinician, or supporter?there?s something here for you.
Join us. Wear the mission. Fund the research.
Grab your shirt today and help make a difference.
All funds--every, single penny raised--will go directly to The Norris Lab at MUSC. My daughter, Cora, was recently invited to participate in the lab's Visiting Scholar Program, and it was a life-changing event for both of us. For the first time in a LONG time, she felt seen, heard, and hopeful to know that some really smart people are working incredibly hard to find answers, create community, and develop systems of proper care for people living with EDS.
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