For those of you that don?t know Waylon, please take a moment to read this so at the very least you can take a piece of him with you too. Waylon Sterner is the sweetest, most loving 5 year old little boy with the personality of a cartoon character. There is no other 5 year old with as big of a heart and personality as him. He is the ray of sun that peaks behind the clouds in the hardest of times. He loves life, and he loves everyone in his life. Recently, Waylon was hospitalized in the ICU following the diagnoses of the flu, bronchitis and double ear infections. The doctors discovered inflammation on his brain and worked diligently to find the cause. What they found was an incurable genetic neurological disease, a form of LEUKODYSTROPHY that causes progressive white matter destruction in the brain, often leading to severe neurological decline that causes basic functions like talking or movement to become a challenge for Waylon. This disease is eventually terminal, and requires various forms of therapies (speech, physical, occupational) there are clinical trials that we will continue to try to get him to be a part of we just have to wait for openings to become available.